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LINKS
My
Child, My Gift: A Positive Response to
Serious Prenatal Diagnosis
Author:
Madeline Pecora Nugent
Publisher: New City Press
These
links are a sampling of the great deal of
information available via the internet and
are intended as a starting point for
research. While the following links are
either supportive or non-committal regarding
carrying your baby to term, some of them may
link to termination sites. Please contact us
if a link is not working.
ABORTION
(TERMINATION OF PREGNANCY, PREGNANCY
INDUCTION TO END PREGNANCY)
Abortion Coercion
Abortion Information
Abortion Quotes
ADOPTION
Adoption Blessings
Newsletter
Christian Homes and
Special Kids
Jewel Among Jewels
Adoption Network
Special Needs Adoption
Tree of Life
ANENCEPHALY
Anencephaly Blessings
from Above
(you will need a yahoo email ID and password
to access these pages. Obtain one by going
to yahoo.com)
Anencephaly
Information
AUTISM
Youth Advocate
Programs, Inc.
BLINDNESS
KNFB Reader
Hand held device that reads text and then
translates it to audio
BREASTFEEDING
La Leche League
CARRYING
TO TERM
A Child of Promise
Be Not Afraid
Stories and photos from parents who carried
to term despite a serious prenatal diagnosis
Carrying to Term pages
Carrying to Term after
Negative Prenatal Diagnosis
Carrying to Term
Support Pages
Sharing board for those carrying to term.
Prenatal Diagnosis:
Information and Stories
Prenatal Partners for
Life
CLOTHING
God’s Tiny Angels
Hand crafted clothing for premature babies
DEAFBLINDNESS
A-Z to Deafblindness
Many resources for those who are both deaf
and blind
DISABILITY
Alliance for
Technology Access
Disability Is Natural
Mobility International
USA
National Dissemination
Center for Children with Disabilities
Information on USA federal laws for children
with disabilities. Catalog of free resources
Open Directory on
Children with Special Needs
Thumbs Down to Pity
(on line video produced by a young man with
a disability)
DOCTORS (these
groups can help you locate doctors who will
support your decision to continue your
pregnancy)
American Association
of Prolife Obstetricians and Gynecologists
Catholic Medical
Association
Christian Medical
Association
Pro-life
Maternal-Fetal Medicine
DOWN
SYNDROME
Down Syndrome Resource
Center
Einstein Syndrome
Parent support for Down Syndrome
National Down Syndrome
Society
DWARFISM
Little People of
America
FEEDING
Feeding by G-tube
EDUCATION
IDEA --Individuals
with Disabilities Education Act
Learning Disabilities
Association of America
GRIEF
Baby Steps
Claire’s Friends
Elizabeth Ministry
Empty Cradles
Morning Light Ministry
My Forever Child
Keepsake items
Hannah's Prayer
Ministries
Shrine of the Holy
Innocents
Click
on the Shrine link in left link column to
memorialize your baby
HEART
DEFECTS
Congenital Heart
Information Network
Hypoplastic Left Heart
Syndrome (HLHS) Information
Little Hearts
Support for families of children with
congenital heart defects
HYDRANENCEPHALY
Rays of Sunshine
Information and support for families of
children with hydranencephaly
HYDROCEPHALUS. See Spina Bifida and
Hydrocephalus Category below
LIMB
DIFFERENCES
First Step: A Guide
for Adapting to Limb Loss
Helping Hands
Foundation
Support groups for limb differences
Youth in Motion
Magazine for youth with limb differences
published by the Amputee Coalition of
America
War Amps Champ Program
LINK SITES
Disability Resources
on the Net
Our Kids -- For
Parents of Kids with Disabilities
Website of helpful books on various
conditions and links to many online sites on
various disabilities.
Special Needs Children
Site
MEDICAL
INFORMATION
Medical Dictionary
National Library of
Medicine Data Base
Has many medical journal articles that can
help parents find the latest treatments for
specific conditions, as well as the
physicians who perform them.
MILK BANKS
To Donate Breast Milk
MORAL
TEACHING
Charter for Health
Care Workers,
Pontifical Council for Pastoral
Assistance to Health Care Workers,
Vatican City, 1995
PARENTING
Chromosomal Deletion
Outreach
Matching parents of children with
chromosomal deletion.
Exceptional Parent
Magazine
MUMS
Putting parents in touch with one another
National Respite
Locator Service
Parent Advocacy
Coalition for Educational Rights (PACER)
Parents Helping
Parents
Soul Supporters
Technical Assistance
Alliance for Parents Centers
PERINATAL HOSPICE
Alexandra's House
Perinatal hospice for dying infants and
their families.
Hospice Care Network
Perinatal
Hospice Information
PHOTOGRAPHS
Baby Angel Pics
This company can touch up photos of babies
whose bodies have been disfigured by early
death in utero or by the delivery process.
PRAYER
Disabilities
Ministries
Christian, nondenominational prayer for
people with disabilities.
Prayers for Life
Prayers for families experiencing problem
pregnancies.
Strength in God
Christian spiritual support for people with
physical disabilities
PROBLEM
PREGNANCY HELP
Pregnancy Care Centers
Pregnancy Help Center
Referral
POTTER'S
SYNDROME
Potter’s Syndrome
online support group
RARE
DISEASES
National Organization
for Rare Diseases (N.O.R.D.)
Information plus rare diseases data base.
Includes organization list.
SCHOOL
National Challenged
Homeschoolers Association Network
NATHHAN
Christian families home schooling children
with disabilities.
Individuals with
Disabilities Education Act
Love and Learning
Education at home for children with
differences.
Special Reads for
Special Needs
Reading
and money management instruction for
children who need extra help with these
skills.
Wright's Law
Special education resources and advocacy.
SIBLINGS
The M.I.S.S.
Foundation
Helpful resources for siblings dealing with
death.
Sibling Support
Project
Materials for siblings of children with
differences.
SPINA
BIFIDA AND HYDROCEPHALUS
Hydrocephalus
Foundation, Inc.
Spina Bifida
Association
Spina Bifida Family
Support
Spina
Bifida and Hydrocephalus Association of
Ontario
(SBH [Spirit, Breakthrough, and Hope])
TRISOMY
Living with Trisomy 13
My Little One
(on line movie about a baby with Trisomy 18)
99 Balloons
(on line video about a baby with Trisomy 18)
Rainbows Down Under
Information and support on many Trisomy
conditions.
Support Groups for
Chromosomal Deletions
Groups for every chromosomal deletion known.
S.O.F.T.
Support and information on Trisomy 13, 18,
and related disorders.
My
Child, My Gift: A Positive Response to
Serious Prenatal Diagnosis
To
contact publisher, please email
New City Press
To
contact author, please email
Madeline Pecora Nugent
Would you like to
have a copy of this
book mailed to a
particular
physician, health
care provider,
geneticist, member
of the clergy,
place of worship,
educational
institution,
library, pregnancy counseling
agency, friend,
relative, or other
individual? Or can
you give them a copy
of this book? The
Confraternity of
Penitents supports
the distribution of
this book to such
groups and
individuals and
offers a $5 discount
on each book so
ordered through the
CFP Holy Angels
on-line gift shop.
See this
link
for more
information.
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